Mapping the New Challenges  

The 4th Biennial Cancer Survivorship Research Conference, Cancer Survivorship: Mapping the New Challenges was held in Atlanta, GA, June 18–20, 2008 and co-sponsored by The American Cancer Society, the National Cancer Institute, and the Lance Armstrong Foundation.

 

Agenda/Presentations

Note: If you reference material from the presentations, please acknowledge the source of the information/data by citing the author, title of the presentation, and title of the conference as per below. [Author Name]. (2008). [Title of Presentation]. Podium presentation at the 4th Biennial Cancer Survivorship Research Conference: Mapping the New Challenges, Atlanta, GA. Only those presentations in italics are available for download.

Wednesday, June 18th
8:30 am–1 pm  Registration and check-in for all

9:00 am  Pre-Conference Workshops

1:00 pm Opening Session – Introduction and Remarks

2:00 pm Plenary Beyond Support Groups and Survival: New Directions in Biobehavioral Research
Chair and Facilitator: Paige McDonald, PhD, MPH

National Cancer Institute

Using the state of the science on psychotherapy and cancer survival as background, this plenary session will focus on new research that seeks to promote optimal health and psychosocial functioning and address long-term and late effects of cancer and cancer treatment.

Michael Stefanek, PhD

Behavioral Research Center, American Cancer Society

Cancer support groups and survival: Where are we, how did we get here, and where do we go? A critical review of psychosocial support groups and cancer survival.

Lari Wenzel, PhD

University of California, Irvine

Stress, immunity, and cervical cancer: Biobehavioral outcomes of a psychosocial telephone counseling intervention.

Julienne Bower, PhD

University of California, Los Angeles

Mechanisms and management of cancer-related fatigue, with a focus on novel interventions for the treatment of persistent fatigue in breastcancer survivors.

Charles Raison, MD

Emory University School of Medicine

Biological mechanisms of the association between depression, other behavioral co-morbidities, and cancer, including the relationship between stress and the immune system.

4:30 pm Plenary

The American Cancer Society Studies of Cancer Survivors
Chair and Facilitator: Kevin D. Stein, PhD

American Cancer Society

This plenary focuses on the American Cancer Society's Studies of Cancer
Survivors (SCS), a nationwide program of research focusing on the
quality of life of cancer survivors across the survivorship continuum.

Kevin D. Stein, PhD

Behavioral Research Center, American Cancer Society

Rationale, design, and implementation of the Studies of Cancer Survivors, including some recent findings.

Youngmee Kim, PhD

Behavioral Research Center, American Cancer Society

Quality of life of family caregivers of cancer survivors.

6:00 pm Poster Session

 

Thursday, June 19th


8:00 am Plenary: Seasons of Family Caregivers' Survivorship

Chair and Facilitator: Youngmee Kim, PhD

American Cancer Society
This plenary session will provide a comprehensive and evidence-based overview of the family caregivers' quality of life, addressing unique concerns across different “seasons” or stages of family caregiver survivorship.

Anne Kazak PhD, ABPP

The Children's Hospital of Philadelphia

Quality of life of family caregivers of childhood cancer survivors, focusing on the transition from treatment to post-treatment.

Audie Atienza, PhD

Division of Cancer Control and Population Sciences, National Cancer Institute Quality of life of family caregivers of adult cancer survivors, focusing on the transition from treatment to post-treatment.

Francis J. Keefe, PhD

Duke University Medical Center Quality of life of spouse and adult offspring caregivers of adult cancer survivors.

Laurel Northouse, PhD, RN, FAAN

University of Michigan School of Nursing

Quality of life of family caregivers of adult cancer survivors whose cancer has recurred or who have second or multiple cancers

 

10:00 am Concurrent Symposia: Coping with Cancer

Evidence-Based Interventions for Cancer-Related Emotional Distress
Chair and Facilitator: Kevin D. Stein

American Cancer Society

This concurrent symposium will provide attendees with an enhanced understanding of and appreciation of the challenges of coping with
cancer.

Paul Jacobsen, PhD

H. Lee Moffitt Cancer Center

Evidence-based guidelines for providing psychosocial care for emotional distress.

Barbara Andersen, PhD

Ohio State University

Psychological responses to cancer recurrence and the efficacy of a psychological intervention on both emotional distress and overall physical health.

Annette Stanton, PhD

University of California Los Angeles

Psychosocial needs of off-treatment cancer survivors.

Kathy Smith

New England Division, American Cancer Society

Coping from a cancer survivor’s perspective.

 

Health Services Research and Cancer Survivorship: Evaluating Costs and Medical Care Patterns Among Cancer Survivors
Chair and Facilitator: Michael T. Halpern, MD, PhD, MPH

American Cancer Society

This concurrent symposium will address what health services research has done in the area of survivorship research as well as identifying areas needing further research.

Michael T. Halpern, MD, PhD, MPH

Health Services Research, American Cancer Society

An overview of health services research related to cancer survivorship.

Robin Yabroff, PhD, MBA

National Cancer Institute, Health Services and Economics Branch

Cost issues affecting cancer survivors.

Pamela Short, PhD

Dept. of Health Policy & Administration, The Pennsylvania State University

Workplace disability/work concerns of cancer survivors.

Michael S. Goldstein, PhD

UCLA School of Public Health

 

Use and perceived benefits of complementary and alternative medicine among post-treatment cancer survivors.

Health Disparities: The Many Faces of Survivorship
Chair and Facilitator: Diana Jeffery, PhD

National Cancer Institute

This concurrent symposium session will discuss health disparities as they relate to cancer survivorship, including access to follow-up care, differential rates of psychosocial and physical morbidity, and access to cancer follow-up
care.

Elmer Huerta, MD, MPH

Washington Cancer Institute

Latino cancer survivors.

Kathryn Coe, PhD

University of Arizona

State of cancer survivorship research regarding Native Americans.

Ulrike Boehmer, PhD

Boston University
Sexual minority cancer survivors.

Melinda Stolley, PhD

University of Illinois-Chicago

Pediatric cancer survivorship research among diverse populations.

 

Quality of life and symptoms in cancer survivors
Chair and facilitator: Corinne Crammer, PhD, MDiv, MM

American Cancer Society

Gail C. Dunberger

Karolinska Institutet

Long-Term Adverse Effects after Radiotherapy in Gynecological Cancer Survivors

Shelby L. Langer, PhD

University of Washington

Protective Buffering and Marital Satisfaction Among Cancer Patients and Spousal Caregivers: A Prospective, Longitudinal Investigation

Kim Robien, PhD, RD

University of Minnesota

Quality of Life in a Prospective Cohort of Women with and Without Cancer

John P. Pierce, PhD

University of California, San Diego

Dietary Pattern Influences Breast Cancer Prognosis in Women without Hot Flashes: The Women’s Healthy Eating and Living (WHEL) Trial

Karen Syrjala, PhD

Fred Hutchinson Cancer Center

Musculoskeletal Complications in Long Term Cancer Survivors Receiving High Dose Treatment: Defining Syndromes, Determining Mechanisms

 

Pediatric, adolescent, and young adult cancer survivors
Chair and facilitator: Noreen Aziz, MD, PhD, MPH

National Cancer Institute

Cheryl Cox, PhD, RN

Center for Biobehavioral Health, The Research Institute at Nationwide Children’s Hospital (St. Jude) Childhood Cancer Survivors: Treatment Sequelae, Survivor and Provider Influences on Physical Activity

Mary McBride, MSc

Cancer Control Research, BC Cancer Research Center

Late Morbidity and Late Effects among Long-Term Survivors of Cancer Diagnosed Under Age 20 Years in British Columbia, Canada

Amanda Thompson, PhD

The Research Institute at Nationwide Children’s Hospital

Substance Use and Externalizing Behaviors among Young Adult Survivors of Childhood Cancer

Janice Withycombe, RN, MN, CCRA

University of Arizona

Weight Patterns in Children with Higher Risk ALL: A Report from the Children’s Oncology Group (COG) for CCG 1961


12:00 noon Luncheon (Lynn Sherr, speaker)


1:45 pm Concurrent Symposia
New Groups of Cancer Survivors: Those Surviving Second Cancers, Recurrence, and Advanced Disease
Chair and Facilitator: Julia Rowland, PhD

National Cancer Institute

This concurrent symposium is designed to increase understanding of the
challenges associated with and needs of the growing population of
survivors living longer with complex disease outcomes. These groups
include those at risk for and living with multiple malignancies, with
recurrent disease, or with advanced disease.

Joe Neglia, MD, MPH

University of Minnesota School of Medicine

Patterns of and risk for development of second cancers in survivors of pediatric cancer as reflected in findings from the Childhood Cancer Survivors Study, including implications for future research and care.

Peggy Tucker, MD

Division of Cancer Epidemiology and Genetics, National Cancer Institute

Patterns of and risk for development of second cancers in survivors of adult cancer, including implications for future research and care.

Frances M. Lewis, PhD

University of Washington

Special challenges faced by cancer survivors who experience a recurrence and the impact on couples’ adaptation.

Julia Rose, PhD

Case Western Reserve University

Patterns of adaptation for those living long-term with advanced disease, including implications for future survivorship research and clinical
care.

Jessie Gruman, PhD

Center for the Advancement of Health

Personal, survivor’s perspective on living long-term with chronic and late consequences of cancer. Cancer Survivorship and Aging: An Evolving Science
Chair and Facilitator: Keith Bellizzi, PhD, MPH

National Cancer Institute

This concurrent symposium will offer a trans-disciplinary perspective on cancer survivorship and aging issues.

Timothy Lash DSc, MPH

Boston University School of Public Health

Comorbidities: methods of assessment and analytic techniques.

Martine Extermann, MD

Moffitt Cancer Center

The under-treatment of older cancer survivors and the downstream effects on post-treatment health survivors.

Bill Given, PhD

Michigan State University

The challenges investigators face when conducting cancer survivorship research in an older population.

Linda L. Barrett, PhD

AARP

Engaging aging organizations: perspectives from AARP Patient Communication and Decision-Making Across the Survivorship Experience
Chair and Facilitator: Neeraj Arora, PhD

National Cancer Institute

This concurrent symposium highlights the importance of patient-clinician communication across the survivorship experience, with a special emphasis on the post-treatment survivor.

Steven J. Katz, MD, MPH

Departments of Medicine and Health, Management and Policy, University of Michigan Informed treatment decision making in breast cancer: patient and physician perspectives.

Kenneth Miller, MD

Yale Medical Oncology

Communication opportunities and challenges in providing psychosocial and medical care to post-treatment cancer survivors.

Anthony Back, MD

University of Washington, Seattle Cancer Care Alliance

Facilitating communication among clinicians, patients, and family members during the transition to palliative and/or end-of-life care.

Neeraj Arora, PhD

Division of Cancer Control and Population Sciences, National Cancer Institute

How patient-centered has my cancer care been? Reflections on more than a decade of cancer survivorship.

Sherrie Kaplan, PhD

Center for Health Policy Research, University of California, Irvine

Discussion summarizing the different presentations within the context of the larger picture of treating the whole patient across the
survivorship experience.

Intervention Studies
Chair and facilitator: Tenbroeck Smith, MA

American Cancer Society

Kate DuHamel, PhD

Memorial Sloan-Kettering Cancer Center

Ann Reiner, RN, MN, OCN(R)

Oregon Health & Science University School of Nursing

Baseline Physical Function of Older Breast Cancer Survivors Participating in an Exercise Randomized Trials

Cecile Lengacher, RN, PhD

University of South Florida

Effects of Mindfulness-Based Stress Reduction (MBSR) in Early Stage Breast Cancer Recovery, Preliminary Findings

Laura S. Porter, PhD

Duke University Medical Center

Results of a Randomized Clinical Trial of Partner-Assisted Emotional Disclosure for GI Cancer Patients and Their Spouses: Patient Outcomes


4:00 pm Plenary Designing Survivorship Research for Dissemination and Implementation
Facilitator: Cynthia Vinson, MPA

National Cancer Institute

This plenary session will describe challenges in dissemination and implementation research, present considerations when designing
survivorship research for dissemination, and propose opportunities for research-practice partnerships.

Irene Prabhu Das, PhD

Division of Cancer Control and Population Sciences, National Cancer Institute

Survivorship intervention research: Disseminate or not to disseminate?

James Dearing, PhD

Kaiser Permanente Colorado

Designing for dissemination to avoid challenges in dissemination and implementation of evidence-based interventions.

Deborah Mayer, PhD, RN, AOCN, FAAN

University of North Carolina, Chapel Hill

Challenges in disseminating an evidence-based intervention.

Karen Emmons, PhD

Harvard School of Public Health

Challenges in implementing an evidence-based intervention.

Irene Prabhu Das, PhD

Division of Cancer Control and Population Sciences, National Cancer Institute

Opportunities and resources for survivorship research.

Discussion


6:00 pm Poster Session


Friday, June 20th


8:30 am  Plenary: Transdisciplinary Approaches to Comprehensive Follow-Up Care for Survivors
Chair and Facilitator: Noreen Aziz, MD, PhD, MPH

National Cancer Institute

This plenary session will explore post-treatment survivorship care for survivors, addressing medical, psychosocial, and lifestyle aspects. The integration of these multiple facets of care will be discussed.

Jeffrey Peppercorn, MD, MPH

Duke University

Post-treatment follow-up care specifically from a specialized program, such as one within a cancer center.

Eva Grunfeld, MD

Cancer Care Nova Scotia

Provision of post-treatment follow-up care in the community setting by primary care providers.

Betty Ferrell, PhD, RN

City of Hope National Medical Center

Psychosocial care needs and practices for post-treatment survivors, screening for adverse psychosocial consequences, and post-treatment follow-up care programs or approaches.

Wendy Demark-Wahnefried, MD

UT-MD Anderson Cancer Center

Lifestyle and health behavior issues for survivors.


11:00 am  Closing Session

Survivorship Research and the Media: Pathways to the Public
Moderator: Elissa McCrary, American Cancer Society-South Atlantic Division

Panelists:

Susan Capelouto, Georgia Public Radio

Miriam Falco, CNN

Ken Foskett, Atlanta Journal-Constitution

Michael Stobbe, Associated Press

JaQuitta Williams, WSB-TV, Atlanta

12:00 pm Adjourn