Innovation in a Rapidly Changing Landscape

The 8th Biennial Cancer Survivorship Research Conference, “Innovation in a Rapidly Changing Landscape,” was held at the Omni Shoreham Hotel in Washington, D.C., June 16-18, 2016 and co-sponsored by The American Cancer Society, the National Cancer Institute of the National Institutes of Health, the Centers for Disease Control and Prevention, and the LIVESTRONG Foundation.

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Agenda/Presentations

Note: If you reference material from presentations below, please acknowledge the source of the information/data by citing the author,
title of the presentation and title of the conference.[Author Name]. (2016, June). [Title of Presentation]. Podium presentation at the 8th
Biennial Cancer Survivorship Research Conference, Washington, DC. Only those presentations in italics are available to view/download.

Thursday June 16th, 2016

1:00pm-3:00pm Opening Plenary: Innovation in a Rapidly Changing Landscape

Co-Chair: Kevin D. Stein, PhD
American Cancer Society, Inc.

Co-Chair: Julia Rowland, PhD
National Cancer Institute
Innovation in a Rapidly Changing Landscape [PDF 1615KB]

Co-Chair: Susan Sabatino, MD, MPH
Centers for Disease Control and Prevention

Co-Chair: Loyce Pace, MPH
LIVESTRONG Foundation 

Harvey Cohen, MD
Duke University Medical Center
The Changing Face of Cancer Survivorship

Lucile Adams-Campbell, PhD
Georgetown University
Addressing Racial and Ethnic Disparities in Cancer Survivorship

Larissa Nekhlyudov, MD, MPH
Harvard Medical School

Bradford Hesse, PhD
National Cancer Institute
Emerging Technology Platforms for Survivorship Support and Research

3:30pm-5:00pm BREAKOUTS

1. Integrating Cancer Rehabilitation into Cancer Care

Chair/Introduction: Catherine Alfano, PhD
American Cancer Society, Inc.

Mary Radomski, PhD, OTR/L
Allina Health
Results of the ACRM Delphi Study to Identify Research Priorities Related to Cancer Rehabilitation for Older Adult Cancer Survivors

Mackenzi Pergolotti, PhD, OTR/L
University of North Carolina at Chapel Hill
Using the Geriatric Assessment and Mobile Health Technology to Facilitate Assessment and Referral in Older Adults with Cancer

Kiri Ness, PT, PhD
St. Jude Children's Research Hospital
Identifying Pediatric Cancer Patients with Rehabilitation Needs

2. Leveraging the Changing Landscape to Improve Mental Health Care for Survivors

Chair/Introduction: Natasha Buchanan, PhD
Centers for Disease Control and Prevention
The Past, Present and Future of Mental Health Care for Cancer Survivors [PDF 1388KB]

Elyse Park, PhD MPH
Dana Farber/Harvard Cancer Center
The Affordable Care Act's Implications for Mental Health Services [PDF 2834KB]

Lee Ritterband, PhD
University of Virginia Health Systems
The Role of Information Technology in Addressing Mental Health Needs of Cancer Survivors: E-health, Evidence Based IT Interventions, and Other IT Advances [PDF 3760KB]

Ruth McCorkle, PhD, RN, FAAN
Yale University
Tracking and Monitoring Mental Health Before, During and After Treatment [PDF 628KB]

3. Serving the Needs of Cancer Survivors with Limited English Proficiency (LEP) Co-Chair/Moderator: Kassandra Alcaraz, PhD, MPH
American Cancer Society, Inc.Paula Aristizabal, MD, MASc
Rady Children’s Hospital San Diego & University of California, San Diego

Communication Challenges Faced by Parent of Children with Cancer: Understanding Disparities

Leah Karliner, MD, MCR
University of California, San FranciscoRachel Ceballos, PhD
Fred Hutchinson Cancer Research Center
Building Culturally-Appropriate Interventions using Community Cased Participatory Research Methods

Co-Chair/Discussant: Sylvia Chou, PhD, MPH
National Cancer Institute

4. The Challenges of Adherence to Oral Cancer Agents: Where We Are and Where We Need to Be

Chair/Moderator: Janet de Moor, PhD, MPH
National Cancer Institute

Ann O’Mara, PhD, RN, MPH
National Cancer Institute
The Challenges of Adherence to Oral Cancer Agents: Where We Are and Where We Need to Be [PDF 743KB]

Stephen Kogut, PhD, MBA, RPH
University of Rhode Island
Challenges to Medication Adherence from the Pharmacist’s Perspective and Research Opportunities to Improve Medication Adherence

Margaret Charpentier, RPH, Pharm.D., BCPS, CDOE
University of Rhode Island
Challenges to Adherence from the Pharmacists Perspective

Sandra Spoelstra, PhD, RN
Grand Valley State University
Intervention to Improve Medication Adherence [PDF 359KB]

Bradford Hesse, PhD
National Cancer Institute
Emerging Technology Platforms[PDF 1480KB]

 

Friday June 17th, 2016

8:30am-10:00am Leveraging Measurement and Technological Advances in Older Cancer Survivors

Co-Chair/Speaker: Corinne Leach, MS, PhD, MPH
American Cancer Society, Inc.

Comorbidity Trajectories among Cancer Survivors: Complexities of Measurement and Analytic Techniques

Dilip Jeste, MD
University of California, San Diego
Successful Aging with Cancer [PDF 610KB]

David Ahern, PhD
National Cancer Institute
Advances in Technology to Support Healthy Aging of Cancer Survivors [PDF 1637KB]

Co-Chair/Discussant: Julia Rowland, PhD
National Cancer Institute

10:30am-12:00pm BREAKOUTS

1. Who Needs Specialized vs. Community Programs & Other Lessons Learned from Disseminating Lifestyle Interventions

Co-Chair/Introduction: Kevin D. Stein, PhD
American Cancer Society, Inc.

Katie Schmitz, PhD, MPH
University of Pennsylvania Perelman School of Medicine
Specialized vs. Community Programs: Lessons Learned from Disseminating the PAL Trial [PDF 1555KB]

Jennifer Ligibel, MD
Harvard Medical School/ Dana-Farber Cancer Institute
Lessons learned from evaluating the LIVESTRONG at the YMCA program [PDF 992KB]

Elizabeth Eakin, PhD
University of Queensland
Implementing the Healthy Living after Cancer Program with the Australian Cancer Councils: Successes and Challenges [PDF 3919]

Co-Chair/Discussant: Catherine Alfano, PhD
American Cancer Society, Inc.
Who Needs Specialized vs. Community Programs & Other Lessons Learned from Disseminating Lifestyle Interventions [PDF 648KB]

2. Financial Hardship and Cancer Survivorship

Co-Chair: Don Ekwueme, PhD
Centers for Disease Control and Prevention

Co-Chair/Moderator: Robin Yabroff, PhD MBA
Office of Health Policy, Assistant Secretary for Planning and Evaluation

Reggie Tucker-Seeley, ScD
Dana-Farber/ Harvard Cancer Center
A Conceptual Model of Financial Well-Being for Cancer Research

Jason Zheng, PhD
American Cancer Society, Inc.
Do Cancer Survivors Change Their Prescription Drug Use for Financial Reasons? Findings from a Nationally Representative Sample in the United
States

Mateo Banegas, PhD, MPH
Center for Health Research/ Kaiser Permanente
Understanding Financial Hardship Associated with Cancer

Veena Shankaran, MD
Seattle Cancer Care Alliance

3. Cancer Caregiving: Challenges and Solutions for the Changing Landscape

Co-Chair: Rachel Cannady, BS
American Cancer Society, Inc.

Co-Chair/Introduction: Erin Kent, PhD, MS
National Cancer Institute
Cancer Caregiving: Challenges and Solutions for the Changing Landscape [942KB]

Olle Jane Sahler, MD
University of Rochester Medical Center
Problem-Solving Skills Training for Caregivers of Children with Cancer: Efficacy, Specificity, and Dissemination [PDF 1127KB]

Kristi Graves, PhD
Georgetown University
Diversity and Resilience among Caregivers of Latina Breast Cancer Survivors [PDF 1874KB]

George Demiris, PhD, FACMI
University of Washington
Telehealth Interventions for Cancer Survivors and Their Caregivers: Challenges and Opportunities [PDF 1124KB]

Discussant: Joan Griffin, PhD
Mayo Clinic
Cancer Caregiving: Discussing the Challenges and Solutions for the Changing Landscape [PDF 701KB]

4. Abstract driven session: Meeting the Unique Needs of Survivors

Chair: Susan Sabatino, MD, MPH
Centers for Disease Control and Prevention

Wendy Demark-Wahnefried, PhD, RD
UAB Comprehensive Cancer Center
Informing and Delivering Survivor-Centered Care for Older Cancer Survivors of Common and Less Common Cancers

Karen Meneses, PhD, RN, FAAN
The University of Alabama Comprehensive Cancer Center
Self-reported Needs of Older Survivors of Common and Less Common Cancers

Michelle Martin, PhD
University of Tennessee Health Science Center
Distress Level and Causes among Cancer Survivors of Common and Less Common Cancers

Maria Pisu, PhD
The University of Alabama at Birmingham
Lay Navigation to Address the Needs and Reduce Costs of Care of Common and Less Common Cancer Survivors

Kelly Kenzik, MS, PhD
Institute for Cancer Outcomes and Survivorship, The University of Alabama at Birmingham
Health Care Utilization and Costs in Survivorship between Common and Less Common Cancers

2:00pm-3:30pm The Changing Landscape of Access to Care and Health Insurance

Co- Chair: Robin Yabroff , PhD, MBA
Office of Health Policy, Assistant Secretary for Planning and Evaluation

Co-Chair: Don Ekwueme, PhD
Centers for Disease Control and Prevention

Moderator: J. Leonard Lichtenfeld, MD, MACP
American Cancer Society, Inc.

Dan Mendelson
Avalere Health

Frank Wharam, MB, BCh, BAO, MPH
Harvard Pilgrim Health Care Institute
High-Deductible Insurance and Breast Cancer Care: An Unstoppable Force Meets an Immovable Object?

Ronald Kline, MD
Centers for Medicare and Medicaid Services
The CMS Oncology Care Model - Using an Episode-Based Payment Model to Improve Oncology Care

4:00pm-5:30pm BREAKOUTS

1. Decision-making in Palliative Care – New Directions and Innovations

Chair: Lynne Padgett, PhD
American Cancer Society, Inc.

William Pirl, MD, MPH
Massachusetts General Hospital/ Dana-Farber Cancer Institute
Decision Making Research in Palliative Care

James “Nick” Dionne-Odom, PhD, MSN
University of Alabama at Birmingham
Making the Case for Upstreaming Palliative Care Decision-Support for Cancer Family Caregivers [PDF2244KB]

Paul Han, MD, MA, MPH
Center for Outcomes Research & Evaluation (CORE)
Communicating Individual Prognosis in End-Of-Life Care [PDF 1059KB]

2. Precision Medicine and Late Effects of Cancer Treatment: Evolving Insight

Co-Chair: Joanne Elena, PhD, MPH
National Cancer Institute

Co-Chair: Sandra Mitchell, PhD, CRNP, AOCN
National Cancer Institute

Lois Travis, MD, ScD
Indiana University
Primer on Late Effects of Cancer Treatment in Survivors of Adult-Onset Cancer: Past, Present and Future [PDF 1248KB]

Smita Bhatia, MD, MPH
University of Alabama Comprehensive Cancer Center
At the Vanguard: Genomic Influences on Cardiotoxicity and Second

Jessica Scott, PhD
NASA Johnson Space Center
At the Vanguard: Genomic Influences on Exercise Training-Induced Cardioprotection

Kevin Oeffinger, MD
Memorial Sloan Kettering Cancer Center
Future Directions in Precision Medicine to Favorably Influence Survivorship Outcomes: A Glimpse into the Future [PDF 797KB]

3. Late Effects and Young Adult Survivors of Pediatric, Adolescent, and Young Adult Cancers

Co-Chair: Ashley Wilder Smith, PhD, MPH
National Cancer InstituteTeresa Woodruff, PhD
Northwestern University
A Roadmap for Oncofertility Research and Practice: 2007-2037 [PDF 5459KB]

Kevin Krull, PhD
St. Jude Children’s Research Hospital
Neurocognitive and Psychosocial Outcomes in Adolescent and Young Adult Survivors of Childhood Cancer

Greg Armstrong, MD, MSCE
St. Jude Children’s Research Hospital
Long Term Impact of Cancer and Cancer Therapy on Survivors of Childhood Cancer

Anne Kirchhoff, PhD, MPH
University of Utah
Late Effects and Healthcare Management: Data Resources and Pilot Studies

4. Abstract Driven Session: Best Abstracts

Chair: Tenbroeck Smith, MA
American Cancer Society, Inc.Christopher Recklitis, PhD, MPH
Dana-Farber Cancer Center/Harvard Medical School Sexual Therapy and Rehabilitation after Treatment for Ovarian Cancer (START-OC): Preliminary Results from a Brief Psychosexual Intervention [PDF 684KB]

I-Chan Huang, PhD
St. Jude Children's Research Hospital
Effects of Financial Hardship on Symptoms and Quality of Life Among Long-Term Adult Survivors of Childhood Cancer: Results from the St. Jude Lifetime (SJLIFE) Study

Shawna Hudson, PhD
Rutgers Robert Wood Johnson Medical School
Excels: A Web-Based Program to Facilitate Engaged Self-Management in Primary Care for Cancer Survivorship Follow-up [PDF 945KB]

Talya Salz, PhD
Memorial Sloan-Kettering Cancer Center
Do Cardiovascular Risk Factors Increase Anthracycline-Related Cardiotoxicity Among Non-Hodgkin Lymphoma Survivors? [PDF 704KB]

Alyssa Troeschel, MPH
American Cancer Society, Inc.
Physical Activity and Depression in Post-Treatment Cancer Survivors

Saturday June 18th, 2016

7:30-8:30amTranslating Lifestyle Interventions into Community Practice: Breakfast Roundtable

Karen Syrjala, PhD
Fred Hutchinson Cancer Research Center

Melissa Maitin-Shepard, MPP
American Cancer Society Cancer Action Network, Inc.

Maureen Pike, BSN, RN, MPH
YMCA of the USA

8:30am-10:00am State-of-the-Art Uses of Technology to Improve Survivorship Care

Co-Chair: Blythe Ryerson, PhD, MPH
Centers for Disease Control and Prevention

Co-Chair: Tenbroeck Smith, MA
American Cancer Society, Inc.

Co-Chair: Ashley Wilder Smith, PhD, MPH
National Cancer Institute

Frank Penedo, PhD
Northwestern University
Technology-Based Cognitive Behavioral Stress Management Intervention to Improve HRQoL and Reduce Symptom Burden in Advanced Prostate Cancer

Cathy Bledsoe, MPH
Colorado Department of Public Health and Environment
The Intersection of Two Worlds: Cancer Surveillance and Survivorship [PDF 2656KB]

William Riley, PhD
NIH Office of Behavioral and Social Sciences Research
Discussant for State-of-the-Art Uses of Technology to Improve Survivorship Care

Carrie Tompkins Stricker, PhD, RN
Carevive Systems, Inc.
Leveraging Technology and Patient-generated Health Data to Drive Quality Survivorship Care

10:30am-11:30pm The Intersection of Survivorship Care and Primary Care: Supporting Delivery of Evidence-Based Survivorship Care Within Primary Care

Chair/Introduction: Morgan Daven, MA
American Cancer Society, Inc.

Moderator/Discussant: Ruth Rechis, PhD

Kevin Oeffinger, MD
Memorial Sloan Kettering Cancer Center
Precision Medicine and Late Effects of Cancer Treatment: Evolving Insight; The Intersection of Survivorship Care and Primary Care: Supporting Delivery of Evidence-based Survivorship Care within Primary Care [PDF 799KB]

Larissa Nekhlyudov, MD, MPH

Harvard Medical School
Changing Landscape of Health Care Delivery: Is PCMH the Answer?

Christopher Lathan, MD, MS, MPH
Dana-Farber Cancer Institute

11:30pm-12:30pm Connected Health and Its Implications for Survivorship

Co-Chair: Mary White, ScD, MPH
Centers for Disease Control and Prevention

Co-Chair: Shelley Fuld Nasso, MPP
National Coalition for Cancer Survivorship

Abby Sandler, PhD
National Cancer Institute
Upcoming President’s Cancer Panel Report on Connected Health and Cancer

Roxanne Jensen, PhD
Georgetown University
Connected Health and Its Implications for Survivorship [PDF 532KB]

Susannah Fox
U.S. Department of Health and Human Services

Alicia Staley
Akari Health

Andrew Wolf, MD
University of Virginia Health System
Breast Cancer Survivorship – Primary Care Perspective 

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