Advancing Survivorship Care through Multilevel Collaborations

The 7th Biennial Cancer Survivorship Research Conference, Cancer Survivorship Research: Advancing Survivorship Care through Multilevel Collaborations was held in Atlanta, GA, June 18–20, 2014 and co-sponsored by The American Cancer Society, the National Cancer Institute’s Office of Cancer Survivorship, LIVESTRONG Foundation, and the Centers for Disease Control and Prevention

Access Conference Info via your smart phone or tablet at:



Note: If you reference material from the presentations below, please acknowledge the source of the information/data by citing the author, title of the presentation and title of the conference. [Author Name]. (2014, June). [Title of Presentation]. Podium presentation at the 7th Biennial Cancer Survivorship Research Conference, Atlanta, GA. Only those presentations in italics are available to view/download.

Wednesday June 18th, 2014

12:30pm-1:00pm BRIEF WELCOME
Rich Wender, MD
American Cancer Society

1:00pm-3:00pm  Opening Plenary: Advancing Survivorship...

Co-Chair: Angela Moore, MPH

Centers for Disease Control and PreventionCo-Chair: Stephanie Nutt, MA MPA

LIVESTRONG Foundation 

Speaker/Co-Chair: Stephen Taplin, MD, MPH
National Cancer Institute

The Multilevel Context of Care: Affecting and Harnessing the Interaction between Levels

Speaker/Co-Chair: Judith Lee Smith, PhD
Centers for Disease Control and Prevention

Integrating the Multilevel Context of Care and the National Action Plan for Cancer Survivorship: Opportunities for Public Health [PDF 722KB]

Rebecca Johnson, MD
Seattle Children’s Hospital

Survivor and Health Care Provider Perspective [PDF 1,401KB]

Rebecca Palpant Shimkets, MS
The Carter Center

Survivor and Community Leader Perspective [PDF 1,310KB]

Ellen Stovall
National Coalition for Cancer Survivorship
Survivor, Family Member, and Advocate Perspective

Discussant: Richard Goodman, MD, JD, MPH
Centers for Disease Control and Prevention

3:30pm-5:00pm BREAKOUTS1. Practice Guidelines for Pediatric Survivors...

Co-Chair: Nita Seibel, MD
National Cancer InstituteCo-Chair:

Natasha Buchanan, PhD

Centers for Disease Control and Prevention

Moderator: Paul Nathan, MD, MSc, FRCP(C)
Sick Kids

Wendy Landier, PhD, RN, CPNP,CPON
City of Hope

Children’s Oncology Group Long-Term Follow-Up Guidelines: Development and Yield of Screening [PDF 5,923KB]

Mary Jo Kupst, PhD
Medical College of Wisconsin
Developing Guidelines of Psychosocial Care in Pediatric Cancer: A Multi-Organization and Multi-Disciplinary Project

Melissa Hudson, MD
St. Jude Children’s Research Hospital
Institutional to International Perspectives in Clinical Practice Guidelines for Childhood Cancer Survivors [PDF 1,505KB]

2. A 360° view...Co-Chair: Lee Westmaas, PhD
American Cancer Society

Ellen R. Gritz, PhD
MD Anderson Cancer Center
Cigarette Smoking in Cancer Patients & Survivors: Adverse Effects, Prevalence Trends and Relevant Policy Issues

Robert Schnoll, PhD
University of Pennsylvania
Treating Nicotine Dependence in the Oncologic Context [PDF 745KB]

Vani Nath Simmons, PhD
Moffitt Cancer Center
Smoking Relapse Prevention for Cancer Patients

Discussant/Co-Chair: Nikki Hawkins, PhD
Centers for Disease Control and Prevention

3. Improving the Health... Older American CA Survivors

Co-Chair: Erica Breslau, PhD, MPH
National Cancer Institute

Moderator/Co-Chair: Corinne Leach, MS, PhD, MPH
American Cancer Society

Heidi Klepin, MD
Wake Forest Baptist Medical Center

Collaborating to Improve the Care of Older Cancer Patients: The Cancer and Aging Research Group [PDF 2,103KB]

Supriya Mohile, MD, MS
University of Rochester
Improving the Care of Older Adults with Cancer Using Geriatric Assessment [PDF 805KB]

Ed McAuley, PhD
University of Illinois at Urbana-Champaign
The Intersection of Cancer and Aging: Implications for Physical Activity and Well-Being.

Discussant: Albert Siu, MD
Mt. Sinai Hospital

4. Financial Burden and Employment...

Moderator/Co-Chair: Donatus Ekwueme, PhD
Centers for Disease Control and Prevention

Gery Guy, Jr., PhD, MPH
Centers for Disease Control and Prevention
The Economics of Cancer Survivorship: Estimating Medical Costs and Lost Productivity

Janet de Moor, PhD
National Cancer Institute
What’s Not Working?: Employment after a Cancer Diagnosis

Speaker/Co-Chair: Robin Yabroff, PhD, MBA
National Cancer Institute
Financial Impact of Cancer Among Survivors

Veena Shankaran, MD
Fred Hutchinson Cancer Research Center
Cancer Diagnosis as a Risk Factor for Major Financial Hardship and Bankruptcy [PDF 1,540KB]

Amy Davidoff, PhD
Agency for Healthcare Research and Quality
Effects of the Affordable Care Act Among Cancer Survivors: Expanded Insurance Options and Other Impacts

Roundtable Discussion:
Rebecca Nellis (Cancer and Careers), Robin Yabroff, Gery Guy, Janet de Moor, Veena Shankaran, Amy Davidoff

Thursday June 19th, 2014

8:30am-10:00am Plenary: International Models...

Co-Chair: Kevin Stein, PhD
American Cancer Society

Moderator/Co-Chair: Catherine Alfano, PhD
National Cancer Institute

Jane Maher, MD
Macmillan Cancer Support, UK
Building the UK National Cancer Survivorship Initiative [PDF 3,495KB]

Miranda Velthuis, PhD, MSc
Comprehensive Cancer Center the Netherlands
Developing and Implementing Cancer Survivorship Guidelines in the Netherlands [PDF 1,591KB]

Jonathan Sussman, MD, MSc, FRCPC
McMaster University, Canada
Evaluating Systems of Cancer Survivorship Care in Canada

Discussant: Andrew Salner, MD
Hartford Hospital
Developing and Implementing Survivorship Care in Community Cancer Centers in the United States [PDF 1,251KB]

Discussant: Devon McGoldrick, MPH
Challenges and Opportunities for Implementing Survivorship Care in Low and Middle Income Countries 

10:30am-12:00pm BREAKOUTS

1. Closing the Gaps... Adolescents and Young Adults

Discussant/Co-Chair: Sarah Arvey, PhD

Moderator/Co-Chair: Erin Kent, PhD
National Cancer Institute

S. Lochlann Jain, PhD
Stanford University

K. Scott Baker, MD, MS
Fred Hutchinson Cancer Research Center [Slides Unavailable]

Ashley Wilder Smith, PhD, MPH
National Cancer Institute

2. Cohort Studies and Survivorship Research

Co-Chair: Sarah Arvey, PhD

Moderator/Co-Chair: Joanne Elena, PhD, MPH
National Cancer Institute

Garnet Anderson, PhD
Fred Hutchinson Cancer Research Center
WHI Life and Longevity After Cancer Study (LILAC)

Leslie Robison, PhD
St. Jude Children’s Research Hospital
Childhood Cancer Survivorship Study [PDF 2,891]

Jessica Chubak, PhD
Group Health Research Institute
Cancer Research Network [PDF 659KB]

3. Patient Engagement...Multiple Chronic Illnesses

Moderator/Co-Chair: Neeraj Arora, PhD
National Cancer Institute
Why Focus on Cancer Survivors with Multiple Chronic Conditions?: Session Overview

Charles Von Gunten, MD, PhD
Delivering Whole Patient Care for Cancer Survivors with Multiple Chronic Conditions: Opportunities and Challenges [PDF 1,808KB]

Eric S. Holmboe, MD, FACP FRCP
Accreditation Council for Graduate Medical Education
Facilitating Patient Engagement within the Context of Multiple Chronic Conditions: Patient, Clinician, and System Factors [PDF 441KB]

Moderator/Co-Chair: Stephanie Nutt, MA, MPA
Charting a Research Agenda for Facilitating Patient Engagement among Cancer Survivors with Multiple Chronic Conditions: Panel Discussion among Audience Members, Speakers, and Session Moderators

4. Abstract driven session: eHealth, mHealth, and Social Media

Moderator/Chair: Tenbroeck Smith, MA 
American Cancer Society

Cheryl Cox, PhD
St. Jude Children's Research Hospital
Combining Ehealth and Mhealth Strategies to Promote Risk-Based Cardiovascular Screening in Adult Survivors of Childhood Cancer [PDF 863KB]

Lonneke van de Poll-Franse, PhD
Tilburg University Center of Research
Short-Term and Long-Term Effects of an Automatically Generated Survivorship Care Plan on Patient Reported Outcomes: Longitudinal Results of a Pragmatic Cluster Randomized Controlled Trial (ROGY Care) Among Endometrial Cancer Survivors [PDF 1,519KB]

Kenneth Portier, PhD
American Cancer Society
Understanding the Benefits of Participation in an Online Community of Cancer Survivors and Caregivers [PDF 2,316KB]

Karen Syrjala, PhD
Fred Hutchinson Cancer Research Center
Multicenter Use of an Internet-Accessed, Comprehensive Patient Reported Outcomes (PRO) Screening with an Auto-Generated Clinician Summary to Facilitate Delivery of Survivorship Care: A Report from the Livestrong Survivorship Center of Excellence Network 

2:00pm-3:30pm  Plenary : Activating Cancer Survivors

Moderator/Co-Chair: Corinne Leach, MS, PhD, MPH
American Cancer Society

Marcia Ory, PhD
Texas A&M Health Science Center
Chronic Disease Self Management’s Coming of Age: Implications for Survivorship Care

Sophia Smith, PhD, MSW
Duke University
Evaluation of Pillars4Life: A Virtual, Coping Skills Program for Cancer Survivors and Caregivers

Rebecca Cowens-Alvarado, MPH
American Cancer Society
Evaluating the Effectiveness of an Online Self-Management Program for Cancer Survivors [PDF 863 KB]

Panelist: Teresa Brady, PhD
Centers for Disease Control and Prevention

Panelist: Robin Yabroff, PhD, MBA
National Cancer Institute

Closing/Co-Chair: Nikki Hawkins, PhD
Centers for Disease Control and Prevention [PDF 959KB]

4:00pm-5:30pm BREAKOUTS

1. Survivorship Care for Underserved Populations

Co-Chair: Brenda Adjei, MPA EdD
National Cancer Institute

Moderator/Co-Chair: Sarah Arvey, PhD 

Amelie Ramirez, DrPH, MPH
University of Texas Health Science Center at San Antonio
Impact of Multilevel Initiatives to Address Gaps in Care and Support for Underserved Cancer Survivors Using Community Health Workers and Patient Navigators [Ramirez 3,455KB]

Roxanna Bautista, MPH, CHES
Asian & Pacific Islander American Health Forum
Impact of Collaboration and Coordination on Statewide Policies to Improve Cancer Care and Reduce Racial and Ethnic Health Disparities [PDF 2,251KB]

Ashani Johnson-Turbes, PhD, MA
ICF International
Impact of Policy on Activities/Programs Focused on Improving Cancer Care for Underserved Cancer Survivors

Discussant: Carmina Valle, PhD, MPH
University of North Carolina at Chapel Hill

 2. Caring for the Caregiver

Co-Chair: Rachel Cannady
American Cancer Society

Moderator/Co-Chair: Elizabeth Rohan, PhD MSW
Centers for Disease Control and Prevention

Sharon Manne, PhD
Rutgers University
Couple-Focused Psychological Interventions for Cancer Patients

Allison Applebaum, PhD
Memorial Sloan-Kettering Cancer Center
The Institute for the Study of Cancer Caregivers: A Multi-Level Approach to Providing Support for the Other Survivors [PDF 575KB]

Patricia C. Griffiths, PhD
Emory University
Technology-Based Behavioral and Psycho-Educational Interventions for Caregiving Dyads 

Discussant: Shelby Langer, PhD
University of Washington
View Slides [PDF 446KB]

3. Care TransitionsCo-Chair: Carla Parry, PhD, MA, MSW
Kaiser Permanente Southern California

Corinne Leach, MS, MPH, PhD
American Cancer Society
The Impact of Perceived Preparedness for the Transition to Post-treatment Care on Survivorship Outcomes

Elizabeth Kvale, MD
University of Alabama at Birmingham
Care Transitions and Bridges - Two Programs to Enhance Survivorship Care

Shelly Fuld Nasso, MMP
National Coalition for Cancer Survivorship
Policy Options to Encourage Care Planning and Coordination

Discussant/Co-Chair: Dawn Wiatrek, PhD
American Cancer Society

4. Abstract driven session: Multiple Health Behaviors

Moderator/Chair: Natasha Buchanan, PhD 
Centers for Disease Control & Prevention

Anna Arthur, PhD, MPH, RD
University of Alabama-Birmingham
Pre- and Post-Treatment Dietary Patterns Predict Disease-Related Symptoms 1-Year after Diagnosis in Patients with Head and Neck Squamous Cell Carcinoma

Stephanie George, PhD, MPH, MA
National Cancer Institute
Better Post diagnosis Diet Quality Is Associated with Less Cancer-Related Fatigue in Breast Cancer Survivors

Meng Yang, PhD, MPH
Harvard School of Public Health
Dietary Carbohydrate, Fiber, Glycemic Load and Glycemic Index after Prostate Cancer Diagnosis in Relation to Disease-Specific and Total Mortality  

Bernardine Pinto, PhD
The Miriam Hospital & Warren Alpert Medical School of Brown University
Collaboration with a Community-Based Organization to Implement an Evidence-Based Exercise Intervention for Breast Cancer Survivors Friday

June 20th, 2014

9:00am-10:30am  Plenary: Guidelines/Implementing Survivorship Care

Co-Chair: Ruth Rechis, PhD

Speaker/Co-Chair: Julia Rowland, PhD
National Cancer Institute
Current Status of Survivorship GuidelinesPanelists: Putting Survivorship Guidelines in a Multilevel Context

Patti Ganz, MD
UCLARich Wender, MD
American Cancer Society

Christian Downs, MHA, JD
Association of Community Cancer Centers

Moderator: Mary McCabe, RN, MA
Memorial Sloan-Kettering Cancer Center

11:00am-12:00pm  Plenary: Innovative Uses of Data

Co-Chair: Blythe Ryerson, PhD, MPH
Centers for Disease Control and Prevention

Moderator/Co-Chair: Tenbroeck Smith, MA
American Cancer Society

Christie Eheman, PhD, MSHP
Centers for Disease Control and Prevention
Innovative Uses of Central Cancer Registries for Cancer Survivorship

Richard Moser, PhD
National Cancer Institute
Big Data at the NIH for Survivorship Research: BD2K and Beyond [PDF 3,079KB]

Claire Snyder, PhD
Johns Hopkins
Innovative Uses of Data to Advance Survivorship Care and Research: Reduce, Reuse, Recycle [PDF 1,557KB]